Well, I have learned something very important. If you are receiving SAGA benefits and you are physically out of the State of CT for more than 30 days, then you will automatically lose your benefits. This means that you cannot get the limited health benefits that SAGA provides, and you cannot get any medications.
My husband went to the pharmacy this morning to get our son’s medications, so he could overnight them to us in NC today. He was told that our son’s SAGA card was not valid now, and he would have to pay almost $400.00 for the two prescriptions! We definitely don’t have that money, so I called the Supervisor of Eligibility Services at DSS in New Haven to alert her that we had an urgent situation. Our son’s medications run out tomorrow night!
This is very scary for us, as going off any of these types of medications abruptly can do serious physical and mental harm to the patient. However, the last several days are very indicative of how we live on an emotional roller coaster from day to day, and sometimes from hour to hour. To say this is exhausting is an understatement.
I also put in a call to our son’s attorney, so that she also knows that this is taking place.
I am really exhausted, and even though I thought I would get a great night’s sleep last night, I ended up waking up at midnight and not being able to go back to sleep until around 4:00am. The sleep disruption is truly wreaking havoc with my nervous system and psyche. I am so tired of being tired!
I will post an update to this medical emergency as soon as I can. Wish us all luck — we really need it now!
